Thursday, March 25, 2010
Yeah, OK, so I haven't blogged in, well, forever. I've not had anything to say, I guess. Either that or Facebook took over my life. But I have something to say today.
My son, Will is 22 and has Down Syndrome, as do many of his siblings. He is not the brightest DS kid I have, but also not the slowest I've had, either. We've been talking a lot about getting the adult kids with DS into group homes, but it is SUCH a painful thing to even consider, let alone plan for.
For example. William loves the Wiggles. He has videos and DVDs he'll watch all the time. One of them has the Six Little Ducks went out to play song in it, where "only 5 of the little ducks came back."
He'll listen to that and get very sad. And when the song is over he'll come to me and say, "Ethan, gone. Fell on the floor. Dead." and then Jack, gone, Cocoa, gone," and down the line of all the pets we've had an lost. If he were older he'd also remember Christopher, Rebecca and Taylor who also left us too soon.
I remember them all, and the pain is always there lurking in the back of my mind and heart. Loss is hard for all of us, but more so for children who don't understand that there IS a life after death. That heaven is a real place, and not a scary place at all.
So it will always be with William. He'll always have the mind and heart of a four year old child. So think about it, moms, about how hard it would be to place your four year old son into a group home, or any home that isn't his own, and there you have my heartbreaking dilemma. How do I place my BABY into a group home?
It's not so hard to think about placing Matt and Jennifer into a group home. They are higher functioning and have friends and social activities. Matt actually begs us to let him move into a group home. He's 25. Robin, who is almost 20, is lower functioning than Will, and it will be hard for her, but I don't think as traumatizing as for Will. Nor will it be too hard on Danielle, Emily, Ross, Jay or Jeremy.
Theoretically, they will all be adults in the next year or two, but...
...a 22 year old four year old shouldn't have to face that, right?
Nine little ducks are about to go out and play. And Mom is crying.