Friday, July 4, 2008

Down Syndrome Lothario


Yesterday my husband and I took Jeremy to the shrink for the first time. His behavior over the three weeks between real school and summer school made us face the facts. He needed to be back on meds.

There should have been a security camera in the waiting room. He displayed all his ADHD symptoms quite well, except, of course, for the breaking windows, putting holes in the wall, stealing things and taunting his siblings. He was all over the place. Luckily for most of that time we were to only occupants of the room.

Then a young couple came in and sat opposite us and sat reading a magazine together. Jeremy, of course, goes over to them and puts out his hand to the girl and says, "Hi, I'm Jeremy."

She says hello and then Jeremy says "you're cute" and then stands there winking his eye about ten times. I guess that's supposed to be a big attraction factor.

The he comes back and sits down and tells the young man that he's sending him home. Then he tells the girl to meet him at ten o'clock. Actually, he says, "Girlfriend, meet me at 10 o'clock."

He didn't tell her he was going to marry her, like he normally does with pretty girls, but he did kiss her hand. The young couple took it all with good sport. The kid can crack me up.

The shrink, however, is a medicaid flunky shrink. Have you noticed that the psychiatrists that take medicaid are nothing more than pill pushers? This guy talked to me for a while without Jeremy, then brought the kid in and talked to him and prescribed two meds. One of which is a controlled substance. which means two things: 1. medicaid will fight paying for it and 2. we'll have to make the trek into town each month to pick up am RX form, because there are never any refills on these drugs.

It's probably going to take months before we can get him approved for this one drug, and then every couple months they will stop paying for it, and we'll have to fight for it again. I tried to talk him into Strattera, which worked OK for him years ago, AND isn't a controlled substance. Yes we'd stil have to fight medicaid to get it, but at least there can be refills. But, no...this new drug will supposedly work much better than Strattera.

I think all medicaid shrinks get a kickback from the drug companies when they prescribe a new drug. That's all these guys do. Kid walks in, parent says ADHD, he says to himself, "Which ADHD drug did the pretty drug rep in the gray suit, high heels, and black suitcase bring to his attention yesterday?"

There's no real concern for the child. It's like a revolving door. Kid in with ADHD, Kid out with the first drug that comes to mind. NEXT!

Actually I think the government could save money on their medicaid patients with a simple vending machine. You punch in your kid's medicaid number, select from a variety of possible mental conditions that you suspect your child has and press a button and out comes your script. That's all the medicaid shrink does anyway. Let's eliminate the middle man.

We had an excellent shrink lady for ab out a year. She actually spent a LOT of time discussing Will's problems and very carefully made an RX plan for him that actually works pretty well. Not just the top drug being newly sold right now, but the tried and true meds that she knew would fit Will's case. She was wonderful, and she really cared.

She stopped taking medicaid when they never paid her. I miss her,

Wednesday, July 2, 2008

My Beautiful UnGarden

I'm not a gardener like Cindy or Megamom. At 61, I just don't want to go back to playing in the dirt like I did when I was younger. Sure I'd love the fresh veggies...well, maybe next year...Naaah.

I guess what you could say is that I do natural gardening. Natural flower gardening that is.

This photo is of the west end of our back yard. I allowed the Wedelia to take over there, not allowing my husband to mow it down. I did allow him to mow a path around that edges so I can walk the dog in my "Garden."

Wedelia is also known as "creeping daisy, and most folks here try hard to get rid of it, but it is just so marvelously beautiful when it covers an entire meadow (we don't really have meadows here, but this will do.)

How can anyone walk through this part of our huge back yard and not feel happy? It brings me peace. It takes over a yard real fast, but I'm hoping by next time this year the entire backyard is full of the tiny little bright yellow daisies. I even picked some of the flowers and threw them into what should be a flower bed in front of the wheelchair ramp in hope, no, knowing full well, that it will take over and next year I'll have a pretty yellow flower bed out front.

I just realized tonight that the whole wedelia thing is sort of a symbol of my whole life. I find beauty in the way natural flowers spread out over my little peace of heaven. Just the way I've found beauty in the 21 kids we've raised or are still raising. They aren't the healthy white infants that most people want to adopt. But they are truly more beautiful because of how they were born. I love them just the way they are, just like my creeping daisies.

And like the wedelia, we let our family keep growing and spreading. No mowing or pruning-like those families we meet who always say, "I don't know how you do it. I only have two and they drive me crazy."

And this human garden has given me much more than green peppers and tomatoes. Thank you, God, for both my natural gardens.

Sunday, June 29, 2008

Only in Palm Beach


My adult son Jonathan got called into the architect office where he works at 6PM Sunday. Seems they have been drawing up plans for George Hamilton's Palm Beach Condo and there was an architectural emergency. Rush job.

Only in Palm Beach do you have architectural emergencies.

Down Syndrome Kids vs "Normal" Kids

You get very different reactions from DS kids than you get with so called normal kids. For example:

Mom to "normal" kid: It's your turn to do the dishes

Normal Kid: I did them last week. Anyway I have too much homework to finish and my softball game is starting in four hours. And I think it's Nancy's turn.

Mom to kid with Down Syndrome:
It's your turn to do the dishes

Kid with Down Syndrome:
YAY!

Saturday, June 28, 2008

How to Cut Down on Laundry


It occurred to me this morning as I was loading the washer that I could solve the whol massive laundry problem that a family of 11 creates.

It's easy. Just give each child one set of clothing, one towel and washrag and one set of sheets. Every morning you wash the sheets and at night when the kids remove their clothes you pop them in the washer.

OK...that's impractical, but I can dream can't i?

Thursday, June 26, 2008

Down Syndrome

Quite often I get phone calls from colleges, trade schools and the army, nay and marines for one of my adult kids who have Down syndrome. Yesterday I got a call from Lincoln College and they asked to speak to William. I replied, "William is a 20 year old young man who has Down Syndrome. He won't be attending college."

The lady said, "Oh, I'm so sorry to hear that!"

I get that all the time. What's funny is that I'm not sorry Will has DS. He wouldn't be the WIll I know and love if he didn't have DS. And Will, himself, isn't concerned that he has DS. He could care less. He's happy.

Some people think that it's a tragedy that a child is born with Down Syndrome. I don't think it's any more a tragedy than a child is born with, say, blue eyes. It's how God made him, and I'm fine with that. So is Will.

Speaking of adults with DS, Matt and Jennifer, both 23, go to the regional Hab Center to work every day. They get up at 6 and take a bus downtown to the center, work all day for a paycheck and take the bus home. Every morning, Matt makes a bag lunch for both himself and Jennifer.

Something happened to Matt's funding stream, and for a time now he's had to stay home on Tuesdays and Thursdays. He could sleep in, but Matt gets up those days and faithfully makes Jen her sandwich and packs her lunch. THAT'S Down Syndrome for you.

Wednesday, June 25, 2008

Teachers ....


I have 7 kids in summer school. Six are going to the same high school special ed program. Two are in one class and three in the other. Jeremy goes to the specialized county run school for MR kids with extremely bad behavior.

Got a note home from the teachers that they wanted $5 per kid to buy a BETA FISH (also called a Siamese Fighting Fish.) The kids will learn how to take care of the fish and at the end of summer school will be able to BRING THE FISH HOME. NO WAY.

We have three cats, and we have WILL and JEREMY. Those fish would not survive, and if they did it would be because I took care of them, and I'm not gonna do that.

Hey, you can't even put them into an aquarium together as they'd kill each other. And I guarantee that Will and/or Jeremy would do the honors if they were brought home in little one fish bowls.

The school isn't answering the phone this AM...ARRGH.